North American SDS Registry

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The North American Shwachman-Diamond Syndrome Registry is now enrolling patients.   If you are interested in joining the Shwachman-Diamond Syndrome Registry, please contact Audry Anna Bolyard at 206-543-9747, toll free 800-726-4463 or by email:

For more information, please see the Shwachman-Diamond Syndrome Registry Brochure